Monday, 7 December 2015

11 Weeks Post Update - SORRY i'VE BEEN A LAZY BLOGGER

OK so 11 weeks post Lemtrada round 1 and lots seems to have been going on lately. In the beginning I was reluctant to report my lack of improvement and I just wanted to wait and see for something better to say (I know this isn't the point of blogging but I'm gonna get on top of this and get doing some back dating of posts).

So just before 10 weeks post I went to Berlin (my boyfriend is German and had mostly stayed with me since the Lemtrada week). So in Germany I had a busy schedule of people to see. First I went to my work xmas party on Fri night, it was in a night club and unfortunately this proved to be a physical challenge too far, so basically I sat and listened to music, it wasn't so bad but it taught me a lesson of my limits for now - I'm not invincible yet and still easily very stiff legged and exhausted!

On Saturday I met up with a few friends for dinner and ouzo at a Greek restaurant and it was a great evening out. Sitting, talking and laughing (that's my style) and I even dared to get very drunk for the laugh (I knew my liver was working well and I had 3 weeks for my liver to recover in time for the next blood test).

Otherwise biscuit baking and meeting with friends was good to get away from home where my slow boring lifestyle needed some new challenges for a weekend. I must admit it was tiring, but I needed it!

11 Weeks post now and I went to the capital FM Jingle Bell Ball at the O2 arena, was a challenge to go across London on the tube and then walk to the O2 and round to the entrance I was allocated for my seats (the opposite side to the entrance). I managed by having dinner at a restaurant half way round. As my bf has kindly informed me this was a real triumph for me and was the most physically challenging thing I had done since Lemtrada and even probably a long time before that.

In summary of my progress so far I am still weak and sometimes easily challenged, however I'm getting gradually better all the time (need to  focus on the small things, nothing like this will recover overnight). I'm still working from home to avoid the germs of the office and the additional effort to get into the office, but my working ability is also slowly improving (with regards to stamina  typing and using a mouse and looking at the computer)