My Lemtrada round 2 was done on Wed 28 - Fri 30 September. It was strange as I was expecting to join others also receiving Lemtrada during my stay this time ... but no, there were others in my ward but none of them lemmies (2 having first fingolimod / Gilenya and a few other non MSers).
In contrast to my round #1 stay the wards on 10 north (Charing Cross Hospital) were quite quiet and a full night's sleep was possible (even after steroids). On day 1 it was a slow start waiting for blood & urine test results. Started the pre Lem steroids at 14:10 which was OK. I was ready-ing myself for some reactions, but nothing, I rested and avoided even getting a headache. Drank lots which should help avoid headache and dehydration I guess, and if nothing else, it at least gave me a reason to get out of bed. No rash at all, I couldn't believe it.
I felt more tired on day 2, but nothing significant. Still no significant rash or other reactions, just stayed in bed watching a movie on Netflix on my sisters ipad. The movie I watched was interesting 'The lives of others' 2006, I'd highly recommend it although the movie is in German with English subtitles. a few spots of a rash but was only noticeable as I was looking for it.
Day 3 came and went, and I couldn't believe it was all over, seemingly so easily. By the time we were leaving I realised how much I looked forward to getting back to my own bed, although I had rather settled into having the electronic reclining function in my hospital bed again.
Saturday morning I had slept longer than usual, i briefly woke to go to the toilet around 7am, looked for any rash to find nothing so crawled back into bed to sleep as long as I could. Only woke up again at 11am to find I was absolutely covered in the rash which I thought i had magically escaped. When i woke I was a bit in shock that I had slept through the rash development, Matt said how he had noticed the rash appearing but thought it best not to wake me up (maybe I would have complained at him waking me, but it would have been reasonable).
So I probably needed to take antihistamines for the rash until 4 days post (Wednesday).
Today I a nearly 1 week post and am starting to have some niggling MS symptoms like tingling in arms and legs come back when using hands for typing for example.
So far I'm pleasantly surprised how easily this has gone. I'm gonna try making weekly updates for a while to capture any changes as they happen. I have totally got into a bad food binge lifestyle to try make myself feel better, today the Terry's chocolate orange didn't help my headache and just made me even more annoyed about the fact that I hadn't got onto the exercise bike to try and loose any of my belly weight. Trying to loose a stone, but I need to find the right mind set and stop buying nice sweet foods and eating out to even give myself any chance of changing my belly.
