So I just can't believe how fast time is flying past since round 2 at the very end of September. Charring Cross signed me off work for the initial 2 weeks after the last infusion on 30th September 2016, following that I have been working full time, but from home, to avoid the general germs of the hospital I work in and amongst committed colleagues which it seems must be literally dying before they take a day off sick ... so i work in a bed of germ-ieness I guess.
I must admit no matter how good I felt I was easily reaching my limits after 30 minutes of standing. I didn't experience the vertigo or extreme fatigue like i had after the first round. I'm doing most thing's I'd like to do, and even a drink in the pub is a possibility ... I was just disheartened to find I could only pluck up the leg stamina for dancing to only 2 songs before needing to find a chair. It's early days and I need to be patient to eel the benefit in full from this round.
So this weekend I am off to Germany for a friend's 40th birthday party ... hopefully I will make it through the airport, praying for an A gate in terminal 5 then i could walk, but will just need to reach out for the mobility assistance if I'm departing from a B or C gate (terminal 5 Heathrow). Then after the party will be going to an Archive concert which at least is seated (I'm not a fan of this band, but i've been dragged into this, hope it's good regardless.
I am now working at work in the hospital 1 o 2 days a week because I don't want to become less involved and just disconnected from my team. I'd only just got back to doing 5 days in the office for the last 2 months before round 2.
What is incredibly frustrating is my poor core strength and I'm just so unfit. I have started some physio in harrow with a charity based MS centre. I've only done the initial assessment and am awaiting an email for some further appointments. I need to get back to the exercises i know from my previous physio at Hillingdon hospital, unfortunately just got distracted from this focus and stopped making time for the exercises. I hindsight it was stupid, but now I just need to get back on board.
Typing this reminds me that typing is tiring so I will have a break for now, but an update will be made shortly after returning from Berlin.
