Thursday, 24 September 2015

Day -3 Friday 11 September 2015: the call

So one day at work and I'm talking in the office about my upcoming Lemtrada treatment. The plan was to have the treatment in early September, but hadn't heard anything from the hospital regarding my admission for he week of Lemtrada treatment (Mon-Fri). I was frustrated and anxious and just wanted to hear a progress report to get some idea about where my case was on the hospital priority list.  I had called and left messages with the MS nurses the 2 days previously but had no response.

Then I received a call from Charring Cross asking if i would be available to come for Lemtrada on Monday (someone else ha cancelled their procedure and so there was now availability)! I was gob-smacked and said I would need to double check a few things and confirm shortly. My office was very supportive and told me to go for it, quickly called my mum, then before I knew it I was calling the hospital to confirm I would be able to come in (before I lost this opportunity ).

Needed to tie some things up at work, so stayed late, then packed my desk away into my little suitcase and left the building. Was quite emotional, I was scared, didn't know what would happen and couldn't be sure when I was coming back ... It felt like something out of a movie where the girl has to walk away from what she knows (emotional drama!)

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