I started Lemtrada treatment on Monday 14 September 2015 and this is my blog to let you now what happened next. I wanted to do this just to let other people with MS know what my experiences of Lemtrada are and hopefully help support people considering taking Lemtrada to make a decision regarding their own treatment choice. I'm not sure how good Lemtrada works for me yet, but this will be the documentation of how it goes for me.
Thursday, 11 February 2016
12 - 14 weeks post - a UTI for Xmas
So around 18th or 19th December i became suspicious that I might have a UTI, was at the hospital for a urology appointment anyway so popped by the ms day ward and asked if they could dip stick my urine (I had done this at home first and thought possible trace leukocytes, but the nurse at the hospital said it was clear), so i left it at that. Then the following day i had an appointment with the nurse at my GP surgery who does my monthly blood & urine and there she agreed i may have an infection, with 1 week until i flew to Berlin for new year the GP decided to give me 2 weeks of antibiotics. UTI felt better with AntiB's, but not 100% feeling right still. Not sure what happened but over the whole of my2 week xmas holiday off work, I was sick with something, I felt unwell whenever I ate something ... not sure what i had done to deserve this but it was miserable, it's so depressing to not enjoy eating and especially at Xmas! (the cherry on the cake). I still didn't feel right after the AntiBs were finished, so it finally comes to light in my neurologists and urologists mind that actually i haven't been suffering with recurrent UTIs for the past 2 years as actually there is no really lab evidence of these infections, usually they were treated with AntiBs before the culture came back and showed no culture growth. The new idea from my neurologist is terrible misdiagnosis for the UTIs and really this is neuropathic pain (I was hoping this wasn't the case because it feels a bit too much of a personal hit for the ms chapter that i was hoping to avoid for a bit longer) but at least this opens a new door for symptomatic relief along with some new drugs to try, I'll save the details of what happens next for the next post (too much typing for now, but I'll be back with part 2 of this chapter very soon).
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