So as prescribed by my neuro for neuropathic pain (feels like I have a UTI even if I don't, feels like this every day mostly, so a small living nightmare).When taking the duloxetine I had some bad side effects where i felt sick all the time and couldn't eat much if anything at all. I had trouble sleeping but if i did wake up in the night I did notice some areas of numbness and the stinging uti-esque feeling was actually gone by the 3rd night and i was amazed and thought i needed to try and give this drug a longer chance. Well that feeling didn't last long by early afternoon the next day when i had intense burning sensations in those areas i had felt to be numb the evening before. I couldn't believe how cot i could feel inside even with my skin being cold to touch, and no fever. I took the duloxetine the last time on Monday night (4th dose only), by Tuesday evening I had the ambulance at my house after calling 111 for advice about these symptoms. Yeh I just had to sit it out and calm down as the stress wasn't doing any of my symptoms any favours. After a week of stopping i was recovering but still has strange sensory symptoms. Got an urgent appointment with my neuro, then the bombshell was dropped, was assessed to be probably new relapse activity and urgent MRI requested to be reviewed with my neuro asap.
So now I learn urgent mri still takes 2-3 weeks (even though my neuro wanted it done within 1 week). Neuro suggests if new MRI activity then should consider bone marrow transplant / AHSCT. So that's a bit extreme and so I have everything crossed that my neuro has got it wrong this time around, but he is the expert I guess ... possible scary times ahead (and I barely got half way to Lemtrada round 2! ... but still a possibility with any luck)
Anyone who reads m blog regularly, probably knows i'm quite bad at giving timely updates, but soon after 1st March MRI, I'll be right back here typing, because now this could get interesting :-S
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